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Saturday, September 13, 2025

The Beast

A beast gnaws at me at all hours of the day, but you can't see it. I feel so weak and scattered my mind won't work...
--,Katabasis, R.F. Kuang

In this passage from Katabasis, the author describes the sufferings of a man inflicted with Crohn's disease, which, like MS, is an incurable autoimmune disorder. But the characterization in general may as well refer to all such disorders. It certainly strikes a note in me, for I am suffering these days from a very active phase of MS which is coinciding with and working alongside a problem with herniated discs in my back and neck, exacerbating the problem and exaggerating the pain. Not only does it influence the pain in my shoulder, neck and back, but then modulates to neuropathic symptoms in my legs. This begins with a feeling of numbness in my feet, which then begins to rise up through my ankles and calves in the form of an intense aching stiffness. This in turn makes me want to continually move, to get up and walk around in circles, to stamp my feet on the floor. If I sit down or lie down it will soon feel as if I want to crawl right out of my own skin. I guess this is similar to the RLS I used to often experience, or is a variant form of RLS. There have also been many times when I wake from sleep with a feeling of intense heat in my legs, as if my skin is actually on fire. Pregabalin helps with this, but I have been taking 300 mg a day, separated in three doses, and that feels like a bit much over the long term. So next week I hope to see the doctor and perhaps we can find out what other interventions might help. Until then, thank you, R.F. Kuang, for your sympathetic description.

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